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New York

Consent Forms in Cancer Research: Examining the Effect of Length on Readability

0

Studies

Study First Submitted Date 2020-09-09
Study First Posted Date 2020-09-14
Last Update Posted Date 2022-03-31
Start Month Year September 8, 2020
Primary Completion Month Year July 4, 2023
Verification Month Year March 2022
Verification Date 2022-03-31
Last Update Posted Date 2022-03-31

Detailed Descriptions

Sequence: 20797263
Description This study will determine whether there is a relationship between wordiness of a consent form and whether or not the consent form helped the patient decide to enroll in a clinical trial. This study will also determine whether wordiness of a consent form is associated with patients’ willingness to sign the consent form.

Facilities

Sequence: 200769634
Status Recruiting
Name Mayo Clinic in Rochester
City Rochester
State Minnesota
Zip 55905
Country United States

Facility Contacts

Sequence: 28215062
Facility Id 200769634
Contact Type primary
Name Kathryn Cook, BS
Email [email protected]
Phone 507-422-5154

Conditions

Sequence: 52365045
Name Cancer
Downcase Name cancer

Id Information

Sequence: 40297245
Id Source org_study_id
Id Value 20-007236

Countries

Sequence: 42720292
Name United States
Removed False

Design Groups

Sequence: 55808688 Sequence: 55808689 Sequence: 55808690
Group Type Experimental Group Type Experimental Group Type Experimental
Title 6,000 word consent form Title 4,000 word consent form Title 2,000 word consent form
Description Subjects who are receiving cancer therapy or have been treated for cancer in the past will be asked to review a mock consent form of approximately 6,000 words. Description Subjects who are receiving cancer therapy or have been treated for cancer in the past will be asked to review a mock consent form of approximately 4,000 words. Description Subjects who are receiving cancer therapy or have been treated for cancer in the past will be asked to review a mock consent form of approximately 2,000 words.

Interventions

Sequence: 52675684 Sequence: 52675685 Sequence: 52675686
Intervention Type Other Intervention Type Other Intervention Type Other
Name 6,000 word consent form Name 4,000 word consent form Name 2,000 word consent form
Description Mock consent form with consistent content in approximately 6,000 word length. Description Mock consent form with consistent content in approximately 4,000 word length. Description Mock consent form with consistent content in approximately 2,000 word length.

Design Outcomes

Sequence: 178095419
Outcome Type primary
Measure Decision to enroll
Time Frame Through study completion, approximately 1 hour
Description Number of participants to indicate on the self-reported patient questionnaire that the information provided in the consent form helped make a decision about whether or not to enroll in the trial. This is defined as a response of 1 or 2 on the Likert scale of 1=strongly agree and 5= strongly disagree for information in the consent form was helpful to the decision to join the study.

Sponsors

Sequence: 48499811
Agency Class OTHER
Lead Or Collaborator lead
Name Mayo Clinic

Overall Officials

Sequence: 29387563
Role Principal Investigator
Name Aminah Jatoi, MD
Affiliation Mayo Clinic

Central Contacts

Sequence: 12057979
Contact Type primary
Name Kathryn D Cook, BS
Phone 507-422-5154
Email [email protected]
Role Contact

Design Group Interventions

Sequence: 68413373 Sequence: 68413374 Sequence: 68413375
Design Group Id 55808688 Design Group Id 55808689 Design Group Id 55808690
Intervention Id 52675684 Intervention Id 52675685 Intervention Id 52675686

Eligibilities

Sequence: 30877202
Gender All
Minimum Age 18 Years
Maximum Age N/A
Healthy Volunteers No
Criteria Inclusion Criteria: Patient-reported history of cancer Patient is able to read English Patient-reported age of 18 years or older Exclusion Criteria: None
Adult True
Child False
Older Adult True

Calculated Values

Sequence: 254075458
Number Of Facilities 1
Registered In Calendar Year 2020
Were Results Reported False
Has Us Facility True
Has Single Facility True
Minimum Age Num 18
Minimum Age Unit Years
Number Of Primary Outcomes To Measure 1

Designs

Sequence: 30622991
Allocation Randomized
Intervention Model Parallel Assignment
Observational Model
Primary Purpose Other
Time Perspective
Masking Triple
Subject Masked True
Caregiver Masked True
Investigator Masked True

Links

Sequence: 4403128
Url https://www.mayo.edu/research/clinical-trials
Description Mayo Clinic Clinical Trials

Responsible Parties

Sequence: 28989532
Responsible Party Type Principal Investigator
Name Aminah Jatoi, M.D.
Title Principal Investigator
Affiliation Mayo Clinic