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New York

Meeting an Unmet Need in Multiple Sclerosis

Date:

Node: 90956

Studies

Study First Submitted Date 2023-04-12
Study First Posted Date 2023-07-20
Last Update Posted Date 2023-07-20
Start Month Year April 10, 2023
Primary Completion Month Year April 30, 2025
Verification Month Year July 2023
Verification Date 2023-07-31
Last Update Posted Date 2023-07-20

Detailed Descriptions

Sequence: 20691301
Description The primary objectives of this study is to examine the efficacy of the Unified Protocol in decreasing depression and anxiety among individuals with MS and the secondary outcomes (e.g., improved well-being, QOL, coping, etc.) that may occur in tandem. To achieve this, the investigation has the following specific aims: Specific Aim 1: Conduct a pilot Randomized Controlled Trial (RCT) of the Unified Protocol among individuals with MS to determine the effectiveness of the intervention in reducing depression and anxiety. Hypothesis 1: Individuals who participate in the Unified Protocol intervention will report a decrease in their depression and anxiety compared to individuals in the control group. Specific Aim 2: Conduct a pilot RCT of the Unified Protocol among individuals with MS to determine the effectiveness of the intervention in improving secondary outcomes of psychological well-being, QOL, coping, and MS symptomatology over time. Hypothesis 2: Individuals who participate in the Unified Protocol intervention will report an increase in psychological well-being, QOL, coping, and MS symptomatology over time compared to participants in the control group.

Facilities

Sequence: 199714875
Status Recruiting
Name Kessler Foundation
City East Hanover
State New Jersey
Zip 07936
Country United States

Facility Contacts

Sequence: 28068790 Sequence: 28068791
Facility Id 199714875 Facility Id 199714875
Contact Type primary Contact Type backup
Name Belinda Washington, B.A. Name Lauren B Strober, PhD
Email [email protected] Email [email protected]
Phone 973-324-8446 Phone 973-324-8459

Facility Investigators

Sequence: 18307742
Facility Id 199714875
Role Principal Investigator
Name Lauren Strober, PhD

Conditions

Sequence: 52089935
Name Multiple Sclerosis
Downcase Name multiple sclerosis

Id Information

Sequence: 40094055
Id Source org_study_id
Id Value E-1205-23

Countries

Sequence: 42494114
Name United States
Removed False

Design Groups

Sequence: 55504354 Sequence: 55504355
Group Type Experimental Group Type No Intervention
Title Unified Protocol intervention Title Control group
Description The Unified Protocol consists of 12-weeks, virtual, group sessions focused on reducing depression and anxiety through: (1) Increasing emotional awareness; (2) Cognitive restructuring against dysfunctional beliefs; (3) Changing action tendencies associated with disordered emotions; (4) Preventing emotional avoidance and utilizing emotion exposure techniques; (5) Providing mutual help among group members; and (6) Providing opportunities for corrective experiences. Description The control group will not receive any intervention and will complete the same baseline and follow-up assessments.

Interventions

Sequence: 52403146
Intervention Type Behavioral
Name Unified Protocol
Description The Unified Protocol is a transdiagnostic intervention developed to treat depression and anxiety.

Design Outcomes

Sequence: 177098831 Sequence: 177098832 Sequence: 177098833 Sequence: 177098834 Sequence: 177098835 Sequence: 177098836 Sequence: 177098837 Sequence: 177098838 Sequence: 177098839 Sequence: 177098840 Sequence: 177098841 Sequence: 177098842 Sequence: 177098843
Outcome Type primary Outcome Type primary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary Outcome Type secondary
Measure Hospital Anxiety and Depression Scale (HADS) – Change in Depression Measure Hospital Anxiety and Depression Scale (HADS) – Change in Anxiety Measure Modified Fatigue Impact Scale (MFIS) – Change in Fatigue Measure Pittsburgh Sleep Quality Index (PQSI) – Change in Sleep Measure MOS Pain Effects Scale (PES) – Change in Pain Measure General Self-Efficacy Scale (GSES) – Change in Self-efficacy Measure University of Washington Self-Efficacy Scale – Change in MS specific self-efficacy Measure University of Washington Resilience Scale – Change in Resilience Measure COPE inventory – Change in Coping Measure Benefit Finding in Multiple Sclerosis (BFIMS) – Change in Benefit-finding Measure Satisfaction with Life Scale (SWLS) – Changes in Quality of Life Measure Flourishing Scale (FS) – Change in Quality of Life Measure Ryff Psychological Well-being Scales (RYFFPWB) – Changes in well-being
Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks Time Frame Baseline, 12 weeks, 24 weeks
Description Self-report measure of depression. Scores range from 0-21 with higher scores indicating greater depression. Description Self-report measure of anxiety. Scores range from 0-21 with higher scores indicating greater anxiety. Description Self-report measure of fatigue. Scores range from 0-84 with higher scores indicating greater fatigue. Description Self-report measure of sleep. Scores range from 0-21 with higher scores indicating greater sleep problems. Description Self-report measure of pain. Scores range from 0-30 with higher scores indicating greater pain. Description Self-report measure of self-efficacy. Scores range from 10-40 with higher scores indicating greater self-efficacy. Description Self-report measure of disease self-efficacy. Scores range from 0-100 (T-scores) with higher scores indicating greater self-efficacy. Description Self-report measure of resilience. Scores range from 8-40 with higher scores indicating greater resilience. Description Self-report measure of coping. Scores range from 4-16 for each coping scale with higher scores indicating greater coping. Description Self-report measure of positive coping. Scores range from 43-129 for the total scale with higher scores indicating greater benefit-finding. Description Self-report measure of quality of life and satisfaction. Scores range from 5-35 with higher scores indicating greater life satisfaction. Description Self-report measure of quality of life. Scores range from 8-56 with higher scores indicating greater quality of life. Description Self-report measure of psychological well-being. Scores range from 14-84 for each subscale with higher scores indicating greater psychological well-being.

Browse Conditions

Sequence: 193164412 Sequence: 193164413 Sequence: 193164414 Sequence: 193164415 Sequence: 193164416 Sequence: 193164417 Sequence: 193164418 Sequence: 193164419 Sequence: 193164420
Mesh Term Multiple Sclerosis Mesh Term Sclerosis Mesh Term Pathologic Processes Mesh Term Demyelinating Autoimmune Diseases, CNS Mesh Term Autoimmune Diseases of the Nervous System Mesh Term Nervous System Diseases Mesh Term Demyelinating Diseases Mesh Term Autoimmune Diseases Mesh Term Immune System Diseases
Downcase Mesh Term multiple sclerosis Downcase Mesh Term sclerosis Downcase Mesh Term pathologic processes Downcase Mesh Term demyelinating autoimmune diseases, cns Downcase Mesh Term autoimmune diseases of the nervous system Downcase Mesh Term nervous system diseases Downcase Mesh Term demyelinating diseases Downcase Mesh Term autoimmune diseases Downcase Mesh Term immune system diseases
Mesh Type mesh-list Mesh Type mesh-list Mesh Type mesh-ancestor Mesh Type mesh-ancestor Mesh Type mesh-ancestor Mesh Type mesh-ancestor Mesh Type mesh-ancestor Mesh Type mesh-ancestor Mesh Type mesh-ancestor

Sponsors

Sequence: 48244373
Agency Class OTHER
Lead Or Collaborator lead
Name Kessler Foundation

Central Contacts

Sequence: 11991588 Sequence: 11991589
Contact Type primary Contact Type backup
Name Belinda L Washington, BA Name Lauren B Strober, PhD
Phone 973-324-8446 Phone 973-324-8459
Email [email protected] Email [email protected]
Role Contact Role Contact

Design Group Interventions

Sequence: 68040567
Design Group Id 55504354
Intervention Id 52403146

Eligibilities

Sequence: 30718404
Gender All
Minimum Age 18 Years
Maximum Age N/A
Healthy Volunteers No
Criteria Inclusion Criteria: Diagnosis of multiple sclerosis 18 years of age or older Experiencing significant depression and/or anxiety English-speaking Able to provide informed consent Access to the internet Exclusion Criteria: History of any other neurological illness (e.g. traumatic brain injury, epilepsy, dementia) Current participation in another randomized controlled trial Cognitive impairment that would affect my ability to fully participate in the group Unable to attend group sessions Active participation in another formal clinical group or psychological therapy Any other medical or psychological condition that, in the judgement of the investigators, prevents successful participation in the study
Adult True
Child False
Older Adult True

Calculated Values

Sequence: 253955865
Number Of Facilities 1
Registered In Calendar Year 2023
Were Results Reported False
Has Us Facility True
Has Single Facility True
Minimum Age Num 18
Minimum Age Unit Years
Number Of Primary Outcomes To Measure 2
Number Of Secondary Outcomes To Measure 11

Designs

Sequence: 30464922
Allocation Randomized
Intervention Model Parallel Assignment
Observational Model
Primary Purpose Treatment
Time Perspective
Masking Single
Masking Description The assessor is blinded to the group assignment
Outcomes Assessor Masked True

Responsible Parties

Sequence: 28831375
Responsible Party Type Principal Investigator
Name Lauren Strober
Title Principle Investigator
Affiliation Kessler Foundation